Marfan syndrome in childhood: parents’ perspectives of the impact on the daily functioning of children, parents and family; a qualitative study

Jessica Warnink-Kavelaars (Speaker), Anita Beelen (Speaker), Sarah Dekker (Speaker), Frans Nollet (Speaker), Leonie A Menke (Speaker), Engelbert, R. (Speaker)

Activity: Talk or presentationOral presentation-

Period2019
Event titleEuropean Academy of Childhood Disability in Paris
Event typeConference
LocationParis