Marfan syndrome in childhood: parents’ perspectives of the impact on the daily functioning of children, parents and family; a qualitative study

  • Jessica Warnink-Kavelaars (Speaker)
  • Anita Beelen (Speaker)
  • Sarah Dekker (Speaker)
  • Frans Nollet (Speaker)
  • Leonie A Menke (Speaker)
  • Engelbert, R. (Speaker)

Activity: Talk or presentationOral presentation-

Period2019
Event titleEuropean Academy of Childhood Disability in Paris
Event typeConference
LocationParis