Abstract
Original language | English |
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Pages (from-to) | 2096-2109 |
Journal | American Journal of Medical Genetics - Part A |
Volume | 188 |
Issue number | 7 |
DOIs | |
Publication status | Published - Jul 2022 |
Funding
We thank the parents, children, and adolescents who participated in this study. We are grateful to SIA RAAK‐PRO, part of the Dutch Organization for Scientific Research, for funding this project (NWO; SVB.RAAK>PRO02.007), which is part of a 5‐year research grant of the project “Follow You—a follow‐up program on physical, psychosocial functioning and participation in children and adolescents with (Heritable) Connective Tissue Disorders.” We thank the Clinical Research Unit Amsterdam UMC and Dr. H. Maurice‐Stam for their statistical advise. We also acknowledge the members of the Pediatric Heritable Connective Tissue Disorders study group: Marieke J. H. Baars Rosa de Boer, Eelco Dulfer, Yvonne Hilhorst‐Hofstee, Marlies J. E. Kempers, Ingrid P. C. Krapels, Bart L. Loeys, R. van der Looven, Fransiska Malfait, Laura Muino Mosquera, Annelies E. van der Hulst, Marion A. J. van Rossum, and Femke Stoelinga as well as the Dutch Network Marfan and related disorders, the European Reference Network Skin—Mendelian Connective Tissue Disorders and both the Marfan and Ehlers–Danlos patient associations for the productive discussions. , We thank the parents, children, and adolescents who participated in this study. We are grateful to SIA RAAK-PRO, part of the Dutch Organization for Scientific Research, for funding this project (NWO; SVB.RAAK>PRO02.007), which is part of a 5-year research grant of the project “Follow You—a follow-up program on physical, psychosocial functioning and participation in children and adolescents with (Heritable) Connective Tissue Disorders.” We thank the Clinical Research Unit Amsterdam UMC and Dr. H. Maurice-Stam for their statistical advise. We also acknowledge the members of the Pediatric Heritable Connective Tissue Disorders study group: Marieke J. H. Baars, Rosa de Boer, Eelco Dulfer, Yvonne Hilhorst-Hofstee, Marlies J. E. Kempers, Ingrid P. C. Krapels, Bart L. Loeys, R. van der Looven, Fransiska Malfait, Laura Muino Mosquera, Annelies E. van der Hulst, Marion A. J. van Rossum, and Femke Stoelinga as well as the Dutch Network Marfan and related disorders, the European Reference Network Skin—Mendelian Connective Tissue Disorders and both the Marfan and Ehlers–Danlos patient associations for the productive discussions.